Holiday Cards from Tiny Prints: Best Sale of the Year!

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Still need Christmas cards that don't make you yawn AND support the Trisomy 18 Cause at the same time? Then you need to check out Tiny Prints, who are having their best sale of the entire year...but it ends today! These aren't cards you can buy at the store. These are aren't generic or boring. You can completely personalize the cards, upload your own photos, change the font and text, and make the cards uniquely YOU. The clock is ticking...it only takes a few minutes to create and send the perfect cards. Just follow these simple … [Read more...]

Obamacare and Trisomy 18 Families — Some facts on the table.

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A discussion broke out this last week on Facebook about the Affordable Care Act (aka Obamacare) among our parents,  sharing fears fueled by conservative media outlets that Obamacare will inevitably lead to rationing that will deny care for their disabled children or children they know.  I thought I'd share a series of posts this week about some details to keep in mind. My approach in representing families' needs in National Policy discussions starts from the fact that the ACA is the law of the land and regardless of our political leanings or … [Read more...]

Father’s Dedication wins $10,000 for the Trisomy 18 Cause!

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Scott Verrelli, father of Maia Marie Verrelli lost in 2005, has received a $10,000 Volunteer Recognition grant from Johnson & Johnson. Great News! Trisomy 18 Father Scott Verrelli was selected from among 200 employees at Johnson & Johnson as their recipient of the $10,000 Annual Volunteer Recognition Grant. Scott and Jessica Verrelli and their extended family have been dedicated Trisomy 18 volunteers since the loss of their daughter, Maia Marie Verrelli, in 2005 at 54 days old. He and Jessica have hosted an annual golf tournament in … [Read more...]